I saw one in Wembley - ink black with a Zender body kit and tanned leather interior - but it had turbo issues and needed a respray - but was cheap.
No photos of that one i'm afraid.
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I then saw this one in High Wycombe - but the AA car check didnt work out... shame... |
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Then viewed this one in Southampton - but the price wasnt right |
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Finally bought this one in racing green |
September 30, 2007 in Cars | Permalink | Comments (1)
Today was officially the end of my first Cycle of chemotherapy - and it was the day i bought a car!
Its the third car i've bought - the 5th ive seen as 'mine'. Strangely out of the three ive bought i still have all three of them! This is set to change - the Corrado VR6 is up for sale here
The car is Fiat Coupe 20V Turbo. The one i went for is racing green (not my first choice), with cloth interior (not leathers), 50k miles, 1 owner from new, full fiat service history. Went to view it and it was spotless and drove nicely. It hasnt had its cambelt changed - which is a must - but the owner offered to either have it changed for me prior to sale or take off the price for having it replaced - i opted for #2 and bought it.
It was in Romford so on the way home (A406) i visited a good friend of mine in Redbridge, and then another in Alperton. It was a long and eventful day all round really. In Alperton i got to play on the Ninetendo Wii for the first time! It was fun - but not great - although i did really get in to the Wii tennis.
Energy levels were fine all day despite the stress and tension of the day. Having said that i did have a splitting headache come 9pm!
Next chemo session is set for Tuesday - blood counts on Friday were good - but lets hope they stay up as last time they were good on Friday but dropped a lot by Tuesday and i was border line when having the chemo last time.
September 30, 2007 | Permalink | Comments (1)
Out of no where i got a call to go to the hospital today for a blood count. Now last time my white blood cell counts dropped very late on - this time i was tested on the Friday before chemo (to be given tuesday) to see if they had dropped.
The good news is that - after some drama with me trying to find an available car to drive down there - the blood test was done right away and after 40 mins i got the results that the counts were fine. I also got a print out of all the counts - so here they are:
The last time i had a blood test the nurse said that my platelet levels is still high and they are not sure why. They have risen every time my blood has been taken. Normal levels are between 150 and 400 and currently mine are 689.
I'll have to do some googling about what could be causing that - best substitute to an expert seems to be google / wikipedia!
September 28, 2007 in Chemotherapy | Permalink | Comments (0)
Today i was awake from about 7ish and i stayed up. At 9ish i went to the bank then after that sorted out getting my car to the garage to have its windscreen thingy done. Following that it was the bus home with my dad and then hunting around for Fiat's again and arranging some viewings.
My dad and i drove to near Southampton today to see a Fiat - gave it a thorough look over - but when it came to bargaining the guy was very unflexible on the price - so we walked away. Got to drive one for the first time though - they are quick cars - when the turbo kicks in (2-3k revs) you definately feel it!
There's one that i think is perfect that i'm set to see on Saturday morning - all going well i'll get that one. Its nothing flashy but a very solid base to start from. Working on this Fiat will be a good distraction during Chemo i think!
After we saw the car we went to Portsmouth and had a break around that area. We got some chips and dad had brought some tea and we ate and drank by the sea whilst watching the ferries going past. We even got to see the hovercraft arrive and then later depart - all very dramatic and right up close. A nice relaxing day was completed with having my dad drive us back home whilst i blabered about the relative merits of the various Fiat's we've seen.... a nice day indeed - not felt 'unwell' at any stage today really - and also today was the first time id dressed smartly with almost a suit on in quite a while.
Illness? What illness? I'm going to make the most of this whilst it still lasts...
September 27, 2007 in Chemotherapy | Permalink | Comments (1)
Not much to report today really. Actually, ive just noticed how ive not had any chest pains / chest discomfort for much of today. I went out to my uncle's office in the afternoon for a few hours and some fresh air helped i think. A bit chilly today. Only really on going complaint i have is a slight stomach ache. Its the sort of ache you get through hunger, but no matter how much i eat its still there.
Hairloss is something i am having to deal with more and more. Its just small amounts but it gets everywhere; pillow, sheets, quilt, clothes, shower, sink, hats etc etc. I had been worried about combing it the last couple days thinking it all may come out - but today i did and although plenty did come out still have a full head of hair. Its thinner, but not visibly so i dont think. Quite surprising how much was left on my head after i saw the amount that came out.
Hard to know what rate it will come out in the following weeks, or when i need to make a decision on shaving it all off or not - seems a few weeks away at the moment at least.
On the car front i had planned to be going to buy one tomorrow but the AA check has revealed issues and quite a few potential issues that would need further investigation. As this car is priced high already i think it best to walk away and keep the search up.
September 26, 2007 in Chemotherapy | Permalink | Comments (0)
Today i had my first chance to meet the radiotherapist that will be looking after me during my course of radiotherapy. The plan is to complete the 4 cycles of chemotherapy, and then after 3 weeks have 3 weeks worth of involved-field radiotherapy. Involved field radiotherapy is radiation therapy given to one specific location. For me this will be the right armpit to which the lymphoma is restricted.
I met Dr Philips today and we had a chat followed by a physical exam. If things go to plan i will be seeing him in the new year. He gave me some information about what the treatment entails and answered any questions i had.
Radiotherapy is given without any breaks - so it will be monday to friday for three weeks given everyday. The only real side effects are likely to be temporary scaring and soreness of the area being treated apparently, so not too bad.
He examined the armpit and again was unable to feel any lumps. He did say that a quick response to treatment is often the way with Hodgkins Lymphoma and its good news that its gone down so quickly.
Back home now and only complaint i have today - apart from mild chest pain - is hunger! Off for lunch now! [Apologies to those reading this who are fasting!]
September 25, 2007 in Radiotherapy | Permalink | Comments (0)
Had my appointment today and talked to my chemo nurse about the breathlessness - thankfully i was feeling much better in the morning. She told me to call if it comes back or gets worse and we proceeded with the blood tests.
The news on the blood test was good - all the counts were back up to a healthy level with the Neutrophils up to 3.8 which is much better than on Tuesday. This means that all is set for my next treatment on Tuesday.
One thing i realised today is that ive almost completed cycle 1 - i have 5 days to go before ive officially finished that and that will be 25% of the way through of the chemo.
Feeling much better now and watching the cricket final.
September 24, 2007 in Chemotherapy | Permalink | Comments (1)
Its been a tough 24 hours (no 24 pun intended there!). Its now 5:55 am Monday morning. Ive felt short of breath since about 9pm Saturday evening. I would have gone in to hospital today but i have an appointment Monday morning anyway and my key stats (blood pressure, pulse and temperature) were ok. Feeling short of breath is expected with chemotherapy as the oxygen-carrying red blood cells numbers drop during chemo.
There's no real way to make you feel better in this situation too as far as i know. If the white blood cells drop they can give you a shot of something to boost it - not sure what they can do about the red - i'll see how i get on tomorrow. I am expecting my red blood count to be very low. Its not a nice feeling at all and ive spent a fair amount of the day either with a fan blowing at me or sat outside in the garden. Sleeping is difficult and uncomfortable.
At the same time the hairloss continues, its not something that you could visibly see on me i think - but it just means i keep having loose strands of hair on my hands, neck and pillow.
One concern i have is that when i go in for the blood test tomorrow they may need to admitt me to a ward and then i could miss the 20-20 world cup final! Hopefully if admitted it will be the private wing and i can still get sky sports - fingers crossed!
September 24, 2007 in Chemotherapy | Permalink | Comments (2)
Friday was spent on the trail of another car i am interested in buying. Having something like buying a car to keep you busy is useful - but i could do without the rushing around i think. Friday evening i had my feet up and Ahsen and Sultan came over so that helped.
Friday night i had problems sleeping though. I remember waking up in the night in a sweat, this is not a good sign. I got up and freshened up and then went back to bed - upon waking in the morning i felt bad too and took my temperature. It was 36.1, which is still well within normal limits.
The rest of Saturday, however, was devoted to this car in High Wycombe and 20-20 cricket! My dad drove me and Ibraheem and Ghaalib to view this car. The viewing took about 2 hours in total id say - and involved two test drives as well as lots of going through paperwork and the usual stuff. All day i didnt feel 100%. That evening i had the stress of deciding what to do with this car. I think this didnt help. Slowly my energy levels dropped all evening. I was very hungry also and no matter how much i ate i never felt full.
Another thing that seemed to start today was the hairloss. Whenever i would touch my head or hair i would notice hair on my hands. Its small amounts at the moment, but i can see how annoying it can be.
At 9pm i finally had arranged things with the cars. The storm was all booked for its windscreen to be replaced and the Fiat was booked to have an AA vehicle inspection done. Sorted. That meant i could now try and rest and get back to watching some 24.
Right now its about 1am. I have stopped watching 24 but struggling to sleep. My right armpit area is stinging slightly and the rest of my body feels full of aches and pains. I tried having a long shower - that seemed to help relax me and i am now starting to feel sleepy. Hopefully after this post i'll be able to sleep.
I do feel unwell right now and short of breath. Maybe my honeymoon period of being able to carry on like nothing has changed is coming to an end?
Maybe the fact that the hairloss and shortness of breath started at the same time today show that this is a sign of things to come?
These are concerns i have.
Right now what is difficult is that when you cannot sleep you are very much alone. The world around you is not interested and all systems are on standby. Its a very lonely and helpless feeling. I have no idea how insomniacs deal with this side of not being able to sleep.
Ok - my eyes are getting heavy now so i'll try and sleep.
This is probably the most true to life blog posting yet - its as 'real time' as you can get!
September 23, 2007 in Chemotherapy | Permalink | Comments (1)
Today has been a day of cars more than anything. Corrado VR6 windscreen replacement + rust treatment and hunting after Fiat Coupe's and the world of smoking engines and turbos.
Also i have been watching 24 for the first time!
Healthwise ive felt a bit iffy - slight temperatue - measured it at 36 - felt slightly hot all day though. This evening ive had more hicups and the salty taste is starting to return. I think more water should do the trick.
I have an appointment with the radiotherapist who will be treating me on Tuesday. Its at 12pm and i think this expert will be able to govern if there should be any change to my treatment too. Its in Wimbledon at the Parkside Oncology Clinic. In addition i have a blood test on Monday morning.
On wednesday i have to take my Corrado to the body work place and arrange for RAC windscreen to come do their thing too - so quite a busy week coming up! Hope to buy a car during this time too.
September 20, 2007 in Chemotherapy | Permalink | Comments (1)
No punctures today - so all went well - no real problems at all - takes 2 hours though and despite the cricket being on it was pretty dull, i was quite sleepy too which didnt help!
They took blood again and i have another full blood count scheduled for Monday.
September 19, 2007 in Chemotherapy | Permalink | Comments (0)
Today, whilst having chemo, i was in a lot of pain. Thankfully this was not physical pain - but i was emotionally distraught at watching England lose to New Zealand! They had them on the ropes! They did all the hard work!!! Thankfully Pakistan won later on against Australia! Go Pakistan!
So yes, i did have it privately today and there was Sky Sports in the room. It was a lovely room too - like being in a hotel!
So i had my treatment today, had 3 drugs without any issues, they went to give me the 4th but there was a puncture in it! No joke! So they couldnt give me that one and it has to be re-ordered. It will arrive tomorrow and so i have to go in again.
My white blood cell counts dropped a lot. This was weird as it was the FIRST time really that ive actually seen a blood test come back showing proof of the effects of chemo. The crucial count is the number for your neutrophils - they are the most important type of white blood cell. Healthy level is between 2.5 and 8.5. Last week prior to treatment my level was 5.6. Today it was down to 1.3 and this is very low! If it had been below 1 treatment would have been delayed and i would have had a booster injection.
So this means that right now my immune system is very low. I am going to take some extra precautions about this.
So irfan (aka Smurf) is definately not allowed over for the next few days even though he's said his chest cough / infection is non-contagious. Its just too risk - sorry mate!
Right now i am feeling totally fine - feel good, been watching the other cricket games in the world cup. Eating well, feeling full of energy, and very happy after Pakistan's win!
September 18, 2007 in Chemotherapy | Permalink | Comments (2)
Here are some answers to the questions people always ask - or want to ask but are not sure how - here we go:
1. Can i visit? When is a good time? Are you at home?
My treatments are every 2nd Tuesday. During this time i'm actually at hospital but the rest of the time i am out. I do have to go back for tests etc, but mostly i'll be around.
I am open to visits, but it will vary depending on how i am - currently these are fine. The week of my treatment is likely to be more busy than the 'off week'.
2. Do i need to take any precautions when visiting?
If you have a cold / sore throat / infection etc then its best not to visit as my immune system will be weakened and body will be very sensitive to any illness.
3. Do you still eat the same food?
Tastes change with chemo. I've experienced this a bit already, but it will probably get worse futher on. Also its advisable to avoid unhealthy food and keep yourself healthy. I am still very much up for nandos trips though. Lets all be clear on that!
4. Do you still play sport?
I've not tried since the first chemo session - energy levels are still good but ive been avoiding any sort of exergetion.
5. Can i still ask you favours related to websites / IT / Cars / crazy missions?
Just ask. It depends how i'm feeling at the time, but right now i'm still up for these.
6. Any restrictions on where you can go / what you can do due to health?
Due to weakened immune systems ive been told to avoid crowded areas or gatherings with a lot of people. This means ive been avoiding public transport. Also this means i've not being going to the mosque for Jumma prayers or other prayers during ramadhan - no weddings or big social functions either. Its not that i'm not well enough to go - but its as a precaution to avoid the risk of infection.
7. Do you look the same?
Right now i do - but over time this could change - chemo often leads to weight gain rather than loss - but everyone is very different. Changes related to hair are likely to be the big one.
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Any more questions? Just send me an email / add a comment and i'll add it to this.
September 17, 2007 | Permalink | Comments (1)
My thoughts are now towards chemo session #2. I will reiceve this one as a private patient in the Coombe wing apparently. I've been told i'll get my own room and i am hoping that i'll get Sky! That way i can watch the cricket 20-20 whilst having the ABVD!
Main thing on my mind is still hairloss as its supposed to start after this set of treatments - normally 3/4 weeks after treatment 1... which is soon!
On the car front i am looking at selling my Corrado VR6 and getting a Fiat Coupe 20v Turbo.
Anyone wanting to buy the corrado let me know! Its current on for 3250ono but may reduce it further.
All good on the side effects front, which has meant ive been able to have a really nice weekend packed full of activity with very little of my illness getting in the way - apart from the daily in take of pills + mouth washes.
September 17, 2007 in Chemotherapy | Permalink | Comments (2)
One thing everyone associates with chemotherapy is hair loss.
When i first had a nurse come and explain the treatment i was to have and go through all the side effects she said that as my hair is thick i wont lose my hair. Whilst saying that she was going through a leaflet on the treatment that cleary said:
Hair loss This usually starts 3–4 weeks after the first cycle of treatment. Hair is usually lost completely. You may also have thinning and loss of eyelashes, eyebrows and other body hair. Hair loss is temporary and your hair will start to grow again once the treatment has finished.
So i was a bit confused. I later talked to another doctor who said that i would lose all my hair. So what do you do when you are not sure about something? You GOOGLE it!
There was a huge thread on a cancer forum discussing ABVD and hair loss. The verdict seems to be that total hairloss is very likely but not guaranteed. Most lose their hair, there was one person who had been through 7 treatments and not lost it completely but most seem to lose it.
So where does that leave me? The verdict on the forum seems to be that if you have thick hair then cut it short and hope for the best!
Is that almost being in denial about the hairloss? Maybe. Hairloss would be hard for me because it would mean an obvious and noticable change in me. People would immediately be able to see i was ill - i would be treated differently to how i was before. A very obvious and visual change.
Having said all that in the greater scheme of things it is trivial - the hair grows back and with hair or not you can still lead a normal life... (Is that me reassuring myself?)...
September 14, 2007 in Chemotherapy | Permalink | Comments (3)
Its Ramadhan. The usual Ramadhan timetable is packed with extra prayers, daily visits to the mosque, and the fasting from sunrise to sunset. Its a special time, a time for focusing on your faith whilst spending much time in contemplation, meditation and deep supplication.
But for me this Ramadhan will be very different - and its not easy at the moment.
I cannot fast this year. Its hard because right now i feel well enough to - but its not something i should even consider whilst undergoing chemotherapy. The Quran has an injuction for those who are sick to fast when they are better instead. I will do this i guess, but its like i missing out on a huge chunk of what Ramadhan is all about.
Also i cannot really go to the mosque for prayers. As my immune system is lowered during the treatment i have been told to avoid crowded places to minimise the risk of picking up any sort of illness / infection as this can be quite serious.
This is quite suffocating really - but its the best way to go at the moment, i dont think ignoring the medical advice would benefit me in the long run.
What is sad is that it does not feel like Ramadhan. Its normally so busy and exciting and intense and spiritually charged, but not this time. Others in the home are not fasting either, in fact out of 6 of us there's just my two brother's that are fasting today. Strange.
Even if i cannot partake in the visits to the mosque and the fasting i can still benefit from this special time through spending more time in studying the Quran and religious books. As i am fascinated by this material anyway it sounds like an excellent plan.
September 13, 2007 in Religion | Permalink | Comments (1)
Had another blood test today - they said they would call me if my counts were low, but not had a call so all should be set for next tuesday which is treatment number 2. The two weeks in between have gone quick, hopefully this is something that will continue as the treatment goes on. To be fair its been a very busy time during this period with appointments and things to sort out - so maybe that is why.
Healthwise - thank God - i feel better than i have done since before the biopsy really.
There's still some good friends of mine that are only just finding out - telling people is quite hard - its sad for me to see / hear / read their reactions. Its not the sort of news you want to share really. I've become good at how to tell the story and how to give them the excellent prognosis first etc.
September 13, 2007 in Chemotherapy | Permalink | Comments (0)
Feeling decent still. I am going to Kingston Hospital on Thursday morning for another blood test to get the blood counts. I was told that my counts are likely to drop towards the end of this week so that is why i am having one on Thursday.
Seeing my GP today to see what i go to her for and what i refer to the hospital team. Also hope to talk about time off with the GP too. I think its they who will certify me.
Only symptom i am facing at the moment is hunger. I've eaten so much this morning and still hungry to the point of my stomache aching. Better than feeling sick or anything i suppose.
September 12, 2007 | Permalink | Comments (0)
Had my appointment today and, thank God, there was lots of good news:
A really good day for me.
Healthwise i'm feeling good, and that good news has meant that any weakness i may have had feels miles away right now.
The plan is still for the 4 full cycles of ABVD to be completed despite the big reduction in the lymph node growth. Following this involved field radiation is also still planned - so the quick progress doesnt make any big changes, but it is very encouraging and a nice visible way for me and everyone to see the progress.
Looks like all the prayers are working. Thanks again to you all!
September 10, 2007 in Chemotherapy | Permalink | Comments (2)
Its been a good day so far today, the sore mouth seems to have pretty much gone. I bought some bonjela too which is safer than trying to use, say an ice cube, to numb the pain as i found out earlier!
Right now im having lunch and not only can i taste it all properly but no pain either,so good news.
During chemotherapy i will need weekly blood tests - these will record full blood counts. This allows my levels of white blood cells, red blood cells, lymphocytes, granulocytes, neutrophils, eosinophils and platelets all to be measured and tracked. During the treatment these (especially wbc) can fall to low levels and if they are very low either a booster injection is given or treatment may be put back a week for a given week.
I have one of these blood tests today, and then i am seeing the consultant afterwards. I hope to talk to him about sorting out private treatment and also what the situation should be with work. At the moment its pending a doctor's certificates as to how much time i'll get off. I am entitled to 26 weeks on full pay so id be keen to make full benefit of that - but we'll see what is said. Right now i feel good enough to work. It can change day to day though and it was said by someone from 'occupational health' that the stoping and starting may be more disruptive than having a block of time off.
Once that is sorted i'll know where i stand a bit more and i can work out if i'll get to see the 20-20 cricket world cup on Sky or not!
September 10, 2007 in Chemotherapy | Permalink | Comments (0)
The last 24 hours have been a bit nasty. Struggled sleeping last night and was troubled with a very sore mouth overnight and today. Eating and drinking can be painful unless you are very careful about what you eat. Ice cream has become my favourite food for the past few hours.
As soon as i tried eating anything with some flavour the inside of my mouth / cheeks and tastes bunds would sting. Painkillers and smooth, cool foods / drinks are the best way to manage it. At the same time i need to keep up the 4x a day mouthwash along with lots of teeth brushing.
Oral hygiene is very important as chemotherapy attacks the rapidly dividing cells in the body, and the mouth is full of such cells.
Feeling fine apart from the mouth thing, but its one of those things that really bugs you and is a constant source of pain and irritation.
September 08, 2007 in Chemotherapy | Permalink | Comments (2)
Still feeling much better than i thought i would. After today my daily in take of drugs drops to just two medicines rather than the 6 ive had immediately following Tuesday.
The biggest complaint so far - hiccups. Last night i had them for a bit but today ive had them for about 4 hours and they are quite violent too!
Anyone got any good home cures?
September 06, 2007 in Chemotherapy | Permalink | Comments (0)
First there's the intravenous ones that make up the ABVD regime:
These get given to you via a drip for which you come in to hospital as a day patient. Some anti-sickness drugs are also given at the same time.
Following that the take home drugs are:
September 05, 2007 in Chemotherapy | Permalink | Comments (0)
Still waiting for things to get bad. I did feel quite rough when waking up in the night, but this morning felt fine. Got up and had the various pills this morning, due another round of them soon.
I am in a way still bracing myself - but grateful i'm feeling fine at the moment. I think trying to go for a walk or at least get some fresh air is a good option for today.
I need to arrange a visit to the GP to get a certificate for being off work. I spoke to occupational health from work and they were talking about at least a 6-8 week period of sick leave start immediately. The GP would have to sign that off - we'll see how we go.
September 05, 2007 in Chemotherapy | Permalink | Comments (1)
I am a religious person, so how does being told you have a serious illness affect this?
Strangely enough during my stay in hospital for the biopsy to help diagnose me i was reading Dawkin's 'The God Delusion'.
In this book Dawkins talks a lot of sense, although he does also ignore any theological / scriptural argument that is not related to Christianity.
Still. Reading this whilst in hospital was very interesting. Does praying for someone help them get better? If so should this not be measurable? Is illness a punishment from God? Why are some people seen as 'morally corrupt' given longer lives than so many who are not?
The last two of those questions - though - are from a naive understanding of the world we live in i believe. Islamic philosophy deals with all of these and reflections on a world in which we are given 'free will' helps us to understand many of these things.
You never know what life is going to give you next. When you have good times, be thankful to God, when things go against you learn from this, work hard, and do the best you can. Anyone can get ill at anytime. Prophets have illnesses, we are all mortal human beings.
When i reflect on my illness and its prognosis i can only be greatful and thankful to the All Mighty. It was detected early, i had a very good chance of complete cure, its whilst i am young so better chance of fighting it well, it will mean a break from work...!
Overall it will be a testing time but i do not dwell on things like 'why me'.
There are things in this life you have some control over and some you have almost none.
I had no control over getting this illness and so my focus is working on all the areas i do have control over to help get me through this.
Overall my state of mind is peaceful, focused, and clear.
Not sure how long that will last though when the 'Chemo brain' kicks in!
September 04, 2007 in State of Mind | Permalink | Comments (1)
Today it all began.
The whole process of having the drugs given to me was far less nasty than i expected it to be. It was through a series of intravenous injections and drips. None were painful, as i read at least one could be, and most were quick to be given.
Having said that the day care unit i went to did have about 6 patients today covered by two nurses - and i arrived at 10 and left close to 4pm. I think this may be better when i move to having my treatment privately, which should be by next time.
My evening at home was also very good - its now 10:37pm as i am writing this and apart from unpleasant tastes in my mouth - for which i am ready with strong flavoured sweets - i've not felt any ill effects.
Very early days indeed though.
Still it feels like one obstacle has been negotiated and things are now on the way properly.
I was told some good news today, the bone marrow biopsy has come back negative. No lymphoma has spread to the bone marrow.
One funny thing is the number of medicines i have. I have in total 6 - each taken in different amounts, on different days, and different doses. Thankfully my sister helped, over about an hour, to draw up some Excel sheets [once a geek, always a geek (me, not her!)] with a timetable for the next two weeks and then colour code the medicines with the timetable to make things easier. This will help a lot!
Going to say my prayers and get some rest now.
September 04, 2007 in Chemotherapy | Permalink | Comments (2)
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